Please use this identifier to cite or link to this item: http://docs.prosentient.com.au/prosentientjspui/handle/1/10371
Title: Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the 'On track watch' project.
Authors: Haynes, Emma
Marawili, Minitja
Marika, Brendan Makungun
Mitchell, Alice G
Phillips, Jodi
Bessarab, Dawn
Walker, Roz
Cook, Jeff
Ralph, Anna P
Affiliation: University of Western Australia, Perth, Western Australia, Australia; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia; Menzies School of Health Research, Darwin, Northern Territory, Australia; Charles Darwin University (CDU), Darwin, Northern Territory, Australia. Electronic address: emma.haynes@uwa.edu.au..
Menzies School of Health Research, Darwin, Northern Territory, Australia; Charles Darwin University (CDU), Darwin, Northern Territory, Australia..
Menzies School of Health Research, Darwin, Northern Territory, Australia..
Menzies School of Health Research, Darwin, Northern Territory, Australia; Charles Darwin University (CDU), Darwin, Northern Territory, Australia..
Menzies School of Health Research, Darwin, Northern Territory, Australia; Charles Darwin University (CDU), Darwin, Northern Territory, Australia..
University of Western Australia, Perth, Western Australia, Australia..
University of Western Australia, Perth, Western Australia, Australia; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia..
Laynhapuy Homelands Health Service, Yirrkala, Northern Territory, Australia..
Menzies School of Health Research, Darwin, Northern Territory, Australia; Charles Darwin University (CDU), Darwin, Northern Territory, Australia; Division of Medicine, Royal Darwin Hospital, Darwin, Northern Territory, Australia..
Issue Date: 2019
Citation: Evaluation and program planning 2019; 74: 38-53
Abstract: Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in 'both-way learning' (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.
URI: http://docs.prosentient.com.au/prosentientjspui/handle/1/10371
DOI: 10.1016/j.evalprogplan.2019.02.010
Type: Journal Article
Research Support, Non-U.S. Gov't
Subjects: Aboriginal health inequity
Australian Aboriginal
Co-design
Community-based participatory action research
Empowerment
Health systems
Indigenous
Knowledge exchange
Reciprocal knowledge co-creation
Rheumatic heart disease
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