Please use this identifier to cite or link to this item: http://docs.prosentient.com.au/prosentientjspui/handle/1/10604
Title: Economic and quality of care evaluation of dialysis service models in remote Australia: protocol for a mixed methods study.
Authors: Gorham, Gillian
Howard, Kirsten
Togni, Samantha
Lawton, Paul
Hughes, Jaquelyne
Majoni, Sandawana William
Brown, Sarah
Barnes, Sue
Cass, Alan
Affiliation: Menzies School of Health Research, PO Box 41096, Casuarina, NT, 0811, Australia. gillian.gorham@menzies.edu.au..
University of Sydney, Sydney, Australia..
Menzies School of Health Research, PO Box 41096, Casuarina, NT, 0811, Australia..
Menzies School of Health Research, PO Box 41096, Casuarina, NT, 0811, Australia..
Royal Darwin Hospital, Darwin, Australia..
Royal Darwin Hospital, Darwin, Australia..
Western Desert Nganampa Walytja Palyantjaku Tjutaku (WDNWPT), Alice Springs, Australia..
Northern Territory Department of Housing, Darwin, Australia..
Menzies School of Health Research, PO Box 41096, Casuarina, NT, 0811, Australia..
Issue Date: 2017
Citation: BMC health services research 2017; 17(1): 320
Abstract: Australia's Northern Territory (NT) has the country's highest incidence and prevalence of kidney disease. Indigenous people from remote areas suffer the heaviest disease burden. Concerns regarding cost and sustainability limit the provision of dialysis treatments in remote areas and most Indigenous people requiring dialysis relocate to urban areas. However, this dislocation of people from their family, community and support networks may prove more costly when the broader health, societal and economic consequences for the individual, family and whole of government are considered. The Dialysis Models of Care Study is a large cross organisation mixed methods study. It includes a retrospective (2000-2014) longitudinal data linkage study of two NT cohorts: Renal Cohort 1- comprising approximately 2000 adults who received dialysis and Renal Cohort 2- comprising approximately 400 children of those adults. Linkage of administrative data sets from the Australian and New Zealand Dialysis and Transplant Registry, NT Departments of Health, Housing and Education by a specialist third party (SA/NT Datalink) will enable extraction of activity, financial and outcome data. Interviews with patients, clinicians and service providers, using a snowball technique, will canvass relevant issues and assist in determining the full costs and impacts of the five most used dialysis Models of Care. The study uses a mixed methods approach to investigate the quantitative and qualitative dimensions of the full costs and outcomes associated with the choice of particular dialysis models of care for any given patient. The study includes a large data linkage component that for the first time links health, housing and education data to fully analyse and evaluate the impact on patients, their families and the broader community, resulting from the relocation of people for treatment. The study will generate a large amount of activity, financial and qualitative data that will investigate health costs less directly related to dialysis treatment, costs to government such as housing and/or education and the health, social and economic outcomes experienced by patients. This approach fills an evidence gap critical to health service planners.
URI: http://docs.prosentient.com.au/prosentientjspui/handle/1/10604
DOI: 10.1186/s12913-017-2273-5
Type: Journal Article
Research Support, Non-U.S. Gov't
Subjects: Costs
Data linkage
Dialysis
Economic
Indigenous
Models of care
Outcomes
Adult
Child
Humans
Information Storage and Retrieval
Kidney Diseases
Northern Territory
Population Groups
Research Design
Retrospective Studies
Health Care Costs
Health Services, Indigenous
Quality of Health Care
Renal Dialysis
Appears in Collections:NT Health digital library

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