Please use this identifier to cite or link to this item: http://docs.prosentient.com.au/prosentientjspui/handle/1/10677
Title: Understanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study.
Authors: Ivers, Rebecca Q
Hunter, Kate
Clapham, Kathleen
Coombes, Julieann
Fraser, Sarah
Lo, Serigne
Gabbe, Belinda
Hendrie, Delia
Read, David
Kimble, Roy
Sparnon, Anthony
Stockton, Kellie
Simpson, Renee
Quinn, Linda
Towers, Kurt
Potokar, Tom
Mackean, Tamara
Grant, Julian
Lyons, Ronan A
Jones, Lindsey
Eades, Sandra
Daniels, John
Holland, Andrew J A
Affiliation: Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia School of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..
Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia Poche Centre for Indigenous Health, University of Sydney, Sydney, New South Wales, Australia..
Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia..
Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia..
School of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..
Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia..
Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia..
School of Public Health, Curtin University, Bentley, Western Australia, Australia..
National Critical Care & Trauma Response Centre, Royal Darwin Hospital, Darwin, Northern Territory, Australia..
Australian Centre for Children's Burns and Trauma Research, University of Queensland, Brisbane, Queensland, Australia..
Paediatric Burn Unit, Women's and Children's Hospital, Adelaide, South Australia, Australia..
Australian Centre for Children's Burns and Trauma Research, University of Queensland, Brisbane, Queensland, Australia..
National Critical Care & Trauma Response Centre, Royal Darwin Hospital, Darwin, Northern Territory, Australia..
Paediatric Burn Unit, Women's and Children's Hospital, Adelaide, South Australia, Australia..
Aboriginal Health, Northern and Central Adelaide Local Health Networks, Adelaide, South Australia, Australia..
Department of Burns & Plastic Surgery, Welsh Centre for Burns & Plastic Surgery, Swansea, UK..
Poche Centre for Indigenous Health and Wellbeing, Flinders University, Adelaide, South Australia, Australia..
School of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia..
Farr Institute, Swansea University Medical School, Wales, UK..
Faculty of Medicine, University of Sydney, Sydney, New South Wales, Australia..
Department of Aboriginal Health, Baker IDI Heart and Diabetes Institute, Melbourne, Victoria, Australia..
Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia..
Faculty of Medicine, University of Sydney, Sydney, New South Wales, Australia Discipline of Paediatrics and Child Health, The Children's Hospital at Westmead, Sydney, New South Wales, Australia..
Issue Date: 13-Oct-2015
Citation: BMJ open 2015-10-13; 5(10): e009826
Abstract: Although Aboriginal and Torres Strait Islander children in Australia have higher risk of burns compared with non-Aboriginal children, their access to burn care, particularly postdischarge care, is poorly understood, including the impact of care on functional outcomes. The objective of this study is to describe the burden of burns, access to care and functional outcomes in Aboriginal and Torres Strait Islander children in Australia, and develop appropriate models of care. All Aboriginal and Torres Strait Islander children aged under 16 years of age (and their families) presenting with a burn to a tertiary paediatric burn unit in 4 Australian States (New South Wales (NSW), Queensland, Northern Territory (NT), South Australia (SA)) will be invited to participate. Participants and carers will complete a baseline questionnaire; follow-ups will be completed at 3, 6, 12 and 24 months. Data collected will include sociodemographic information; out of pocket costs; functional outcome; and measures of pain, itch and scarring. Health-related quality of life will be measured using the PedsQL, and impact of injury using the family impact scale. Clinical data and treatment will also be recorded. Around 225 participants will be recruited allowing complete data on around 130 children. Qualitative data collected by in-depth interviews with families, healthcare providers and policymakers will explore the impact of burn injury and outcomes on family life, needs of patients and barriers to healthcare; interviews with families will be conducted by experienced Aboriginal research staff using Indigenous methodologies. Health systems mapping will describe the provision of care. The study has been approved by ethics committees in NSW, SA, NT and Queensland. Study results will be distributed to community members by study newsletters, meetings and via the website; to policymakers and clinicians via policy fora, presentations and publication in peer-reviewed journals.
URI: http://docs.prosentient.com.au/prosentientjspui/handle/1/10677
DOI: 10.1136/bmjopen-2015-009826
Type: Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Subjects: ACCIDENT & EMERGENCY MEDICINE
PLASTIC & RECONSTRUCTIVE SURGERY
Adolescent
Australia
Burns
Child
Child, Preschool
Female
Follow-Up Studies
Humans
Incidence
Infant
Infant, Newborn
Male
Prospective Studies
Health Services, Indigenous
Oceanic Ancestry Group
Quality of Health Care
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