Please use this identifier to cite or link to this item: http://docs.prosentient.com.au/prosentientjspui/handle/1/10804
Title: AUStralian Indigenous Chronic Disease Optimisation Study (AUSI-CDS) prospective observational cohort study to determine if an established chronic disease health care model can be used to deliver better heart failure care among remote Indigenous Australians: Proof of concept-study rationale and protocol.
Authors: Iyngkaran, P
Majoni, V
Nadarajan, K
Haste, M
Battersby, M
Ilton, Marcus
Harris, M
Affiliation: Flinders Human Behaviour and Health Research Unit (FHBHRU), Margaret Tobin Centre, Flinders University, Bedford Park, SA 5001, Australia; Royal Darwin Hospital, Division of Medicine, Level 7 Royal Darwin Hospital, Rocklands Drive, Tiwi, NT 0810, Australia. Electronic address: balaniyngkaran@hotmail.com..
Issue Date: Nov-2013
Citation: Heart, lung & circulation 2013-11; 22(11): 930-9
Abstract: The congestive heart failure syndrome has increased to epidemic proportions and is cause for significant morbidity and mortality. Indigenous patients suffer a greater prevalence with greater severity. Upon diagnosis patients require regular follow-up with medical and allied health services. Patients are prescribed life saving, disease modifying and symptom relieving therapies. This can be an overwhelming experience for patients. To compound this, remoteness, differentials in conventional health care and services pose special problems for Indigenous clients in accessing care. Additional barriers of language, culture, socio-economic disadvantage, negative attitudes towards establishment, social stereotyping, stigma and discrimination act as barriers to improved care. Recent focus supported by clinical evidence support the role of chronic disease self-management programs. A patient focused, problem identification, goal setting and psychosocial modification based program should in principal highlight these issues and help tailor a patient focused comprehensive care plan to complement guideline based care. At present there are no Indigenous focused chronic disease self-management programs. There is a need for research on ways to provide chronic disease management to this group. We therefore designed a study to assess a model of patient focussed comprehensive care for Indigenous Australians with heart failure. AUSI-CDS is a prospective, cohort, observational study to evaluate the efficacy of the standard "Flinders Program of Chronic Condition Management" for Indigenous patients with chronic heart failure. Eligible patients will be Indigenous, suffering from chronic heart failure, in the Northern Territory. The primary end-point is the satisfaction score based on the PACIC. The study will recruit 20 patients and is expected to last 12 months. The rationale and design of the AUSI-CDS using the Flinders Model is described.
URI: http://docs.prosentient.com.au/prosentientjspui/handle/1/10804
DOI: 10.1016/j.hlc.2013.04.001
Type: Clinical Trial
Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Subjects: 6MWT
ASH
Alice Springs Hospital
BNP
Brain Natriuretic Peptide
C&R
CDSMP
CFPI™
CHF
Cue and Response
FMC
FMSC
Flinders Medical Centre
Flinders Model of Self Care
Flinders Program of Chronic Condition Management
HF
Heart failure
Indigenous
NT
NT DHCS
Northern Territory
Northern Territory Department of Health and Families
P&G
PACIC
PHC
PIH
Partners in Health
Problems and Goals
Protocol
RDH
Royal Darwin Hospital
Rural
Self-management
chronic disease self management program
congestive heart failure
heart failure
patient assessment and chronic illness care satisfaction questionnaire
primary health care records
six minute walk test
Australia
Chronic Disease
Female
Heart Failure
Humans
Male
Prevalence
Severity of Illness Index
Delivery of Health Care
Models, Biological
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